Episode 114: Rare Kidney Diseases. Katie's Journey with Loin Pain Haematuria Syndrome

In today's episode, Dee is joined by Katie Newell from Liverpool, England. Katie shares her journey with a rare kidney condition called Loin Pain Haematuria Syndrome (LPHS). Diagnosed after years of persistent urinary tract infections and kidney stones, Katie discusses the impact of LPHS on her physical and mental health, and her mission to raise awareness about this painful and often misunderstood condition.

Katie's story is one of resilience and hope. She offers valuable advice on managing chronic pain, the importance of asking for help, and maintaining a positive mindset. Katie also highlights the challenges of living with an invisible disability and the need for greater awareness and understanding among healthcare professionals and the public.

Don't miss this powerful episode as Katie shares her experiences and insights, aiming to support and inspire others facing similar battles.

 

For updates and more, follow Dee Moore on:

 

Instagram: www.instagram.com/diaryofakidneywarrior 

Facebook: www.facebook.com/diaryofakidneywarrior 

Twitter: www.twitter.com/diaryofakidneyw 

Tik Tok: @diaryofakidneywarrior 

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Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!

 

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Follow Katie on social media:

TikTok @mizz_scouse & @lifewithlphs

 

Instagram & X (Twitter): @mizz_scouse

 

Kidney Care UK

 

• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

 

To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

 

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

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