Diary of a Kidney Warrior Podcast | Living with Kidney Disease

Bonus Episode: 4 Years Of Diary Of A Kidney Warrior Podcast: Dee's Exclusive Listener Led Q&A Episode

Welcome to a special bonus episode of the Diary of a Kidney Warrior podcast, in partnership with Kidney Care UK, where we celebrate four incredible years of sharing kidney health education, kidney warrior stories encouragement and more. Join us for this unique audio and visual episode as our host, Dee Moore, is joined by co-host and kidney brother, Jerome Espy, from Michigan, USA.
In this milestone episode, Dee reflects on her journey since starting the podcast, discussing the challenges and triumphs she's faced along the way. Dee answers questions from listeners around the world, touching on topics such as staying motivated, the impact of kidney disease on mental health, and the importance of support networks.
From sharing personal anecdotes to offering practical advice, this episode is a testament to the strength and resilience of the kidney warrior community. Whether you're a longtime listener or new to the podcast, this celebration of four years is sure to inspire and uplift.
Don't miss this heartfelt episode filled with gratitude, insights, and the unwavering message to "choose to live."
 
This extra special episode is available in both audio and visual formats on YouTube: https://youtu.be/WZFTW-wO3qM
Whether you prefer to watch or listen on the go, we've got you covered!
The audio version can be found on various platforms including here on Podbean, Apple Podcasts, Spotify, Tunein, Alexa, Amazon Music/Audible, iHeartRadio, Listen Notes and more!
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list and stay updated with new episode reminders, episode links, Vlogs, newsletters, and more! Get exclusive access to all the latest updates and never miss a beat. Stay connected with our kidney warrior community and be a part of our journey towards health and wellness. Sign up now and be the first to know about all the exciting content we have in store for you!
diaryofakidneywarrior.getform.com/rjv47
 
 Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

Got Questions for Diary of a Kidney Warrior Podcast Host Dee? We Want to Hear From You?

Join us as we celebrate the fourth birthday of our podcast with a special listener-led bonus episode! This time, we're doing something a little different by inviting you, our listeners, to send in your questions for an exclusive interview session.
Submit your questions in the comments, on social media:
Facebook, Twitter (X) Instagram,
by the end of Saturday, the 31st of August.
Please note that the the deadline for receiving questions has passed.
Tune in on Monday, the 2nd of September, for the release of this special episode, and let's celebrate together!
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
 
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
 
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 

Episode 117: Preparation For Transplantation: Bridging The Medical & Psychological Part 2

Content Warning: This podcast episode contains discussions of a sensitive nature that may be triggering for some individuals.
In this episode, host Dee Moore is joined by specialist renal clinical psychologist Dr. Emma Coyne. This is the final part of a two-part series exploring the psychological support available to kidney patients during the transplant process.
Dr. Emma provides an in-depth look at the complex range of emotions that patients may experience after receiving a kidney transplant. From the initial joy and relief to subsequent feelings of anxiety, loss, and adjustment, this episode delves into the emotional landscape that kidney transplant recipients navigate. Learn how the resilience and strength of Kidney patients shine through during this life-changing journey.
Whether you are a Kidney patient, a family member, or a friend, this episode offers valuable insights into the psychological aspects of kidney transplantation and practical advice on how to support loved ones through this transition.
Join us for this enlightening conversation and discover that life is for living, even amidst the challenges.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
 Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
 
Home - Mind
 
Samaritans
 
Tel: 116 123 (freephone)
 
jo@samaritans.org
 
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
 

Episode 116: Preparation For Transplantation: Bridging The Medical & Psychological

Content Warning. This podcast episode contains discussions of a sensitive nature, including deceased organ donation, that may be triggering for some individuals.
In this episode, Host Dee Moore and Dr Emma Coyne, Renal Clinical Psychologist delve into the crucial role of Psychologists in preparing kidney patients for transplantation. Dr. Emma shares insights on how Psychologists help patients understand their kidney failure, the transplant process, and manage the emotional rollercoaster that accompanies waiting for a transplant. They explore the various challenges faced by different patient groups, the importance of routines around medication, and the psychological impact of both living and deceased donor transplants.
Dee and Dr Emma also discuss strategies for coping with the uncertainty of the wait for a transplant, the importance of having a support system in place, and the emotional complexities involved in receiving an organ from a donor. Dr. Emma emphasises the importance of information and preparation, and offers practical advice on how to manage the psychological demands of the transplant process.
 
Listen in for a wealth of practical advice and encouragement, and remember, you are not alone in this journey. Reach out to your renal team or mental health professionals for personalised support.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
 
Home - Mind
 
Samaritans
 
Tel: 116 123 (freephone)
 
jo@samaritans.org
 
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
 
 
 
 

Diary of a Kidney Warrior Podcast Nominated for GX Award!

Hi, Kidney Warriors and friends, Dee. Moore here.
I'm excited and proud to announce that Diary of a Kidney Warrior podcast has been nominated to receive a GX Award in the Best TV Program or Podcast of the Year category.
Please, please, please can you go to www.thegxawards.com and vote for Diary of a Kidney Warrior podcast?
The voting closes Saturday, the 17th of August. So please, please vote for the podcast?
 
Until next time, take care and choose to live!
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
 
Kidney Care UK
 
https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/mental-health/
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A  
To sign up to receive the Kidney Matters Quarterly Magazine
Email: info@kidneycareuk.org

Episode 115: Overcoming Adversity: A Kidney Warrior's Battle with CKD & Sepsis

Overcoming Adversity: A Kidney Warrior's Battle with CKD & Sepsis.
In this compelling episode, Kidney warrior, Rachel Stuart shares about navigating the challenging journey of Chronic Kidney Disease (CKD) and the life-threatening condition of sepsis. Rachel shares about the emotional and physical toll of being diagnosed with Type 1 diabetes as a child, leading to recurrent kidney infections and ultimately CKD.
 
The conversation takes a deeper turn as we explore the harrowing moments of battling sepsis, the critical care received in the ICU, and the complexities of post-sepsis syndrome. We discuss the importance of mental health support, practical advice for managing peritoneal dialysis, and the emotional rollercoaster of waiting for a simultaneous kidney and pancreas transplant.
 
Join us to hear invaluable insights, coping strategies, and a story of resilience that will inspire and inform anyone facing similar health challenges.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Linkedin: https://www.linkedin.com/in/dee-moore-diaryofakidneywarrior
 
Follow Rachel Stuart
 
Instagram: https://www.instagram.com/transplant.diaries/
 
For more information about the issues raised in this episode
 
Contact Kidney Care UK
 
https://www.kidneycareuk.org/about-kidney-health/living-kidney-disease/mental-health/
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A  
To sign up to receive the Kidney Matters Quarterly Magazine
Email: info@kidneycareuk.org
 
The UK Sepsis Trust
 
https://sepsistrust.org/
X / Twitter: https://x.com/UKSepsisTrust
Facebook: https://www.facebook.com/TheUKSepsisTrust/
YouTube: https://www.youtube.com/user/TheUKSepsisTrust
 
Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
 
Home - Mind
 
Samaritans
 
Tel: 116 123 (freephone)
 
jo@samaritans.org
 
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
 
Childline
 
Tel: 0800 1111
childline.org.uk
Support for children and young people in the UK, including a free helpline and 1-2-1 online chats with counsellors.
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

Episode 114: Rare Kidney Diseases. Katie's Journey with Loin Pain Haematuria Syndrome

In today's episode, Dee is joined by Katie Newell from Liverpool, England. Katie shares her journey with a rare kidney condition called Loin Pain Haematuria Syndrome (LPHS). Diagnosed after years of persistent urinary tract infections and kidney stones, Katie discusses the impact of LPHS on her physical and mental health, and her mission to raise awareness about this painful and often misunderstood condition.
Katie's story is one of resilience and hope. She offers valuable advice on managing chronic pain, the importance of asking for help, and maintaining a positive mindset. Katie also highlights the challenges of living with an invisible disability and the need for greater awareness and understanding among healthcare professionals and the public.
Don't miss this powerful episode as Katie shares her experiences and insights, aiming to support and inspire others facing similar battles.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
Follow Katie on social media:
TikTok @mizz_scouse & @lifewithlphs
 
Instagram & X (Twitter): @mizz_scouse
 
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.

Episode 113: Plant Protein vs. Animal Protein Supplements & CKD

In this enlightening episode of the "Diary of a Kidney Warrior" podcast, host Dee Moore sits down with award-winning renal dietitian Jen Hernandez to delve into the complex world of protein intake for chronic kidney disease (CKD) patients. From the differences between plant and animal proteins to the role of supplements, Jen provides expert insights and practical advice tailored for those living with CKD.
Learn about the recommended dietary guidelines for protein, the benefits of plant-based diets, and how to balance your protein needs whether you're on dialysis or managing early-stage CKD. Jen also shares valuable tips on label reading and navigating the often confusing landscape of protein-rich foods and supplements. Tune in for a comprehensive guide to making informed dietary choices that support kidney health.
 
For updates and more, follow Dee Moore on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
 
 Follow Jen Hernandez
 
Website
https://www.plantpoweredkidneys.com/
 
Instagram
https://www.instagram.com/plantpoweredkidneys
 
Facebook
https://www.facebook.com/plantpoweredkidneys
 
Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
 

Episode 112: Managing Uncertainty in Chronic Kidney Disease

Welcome to the new episode of Diary of a Kidney Warrior podcast. Host Dee Moore is joined by Dr. Roz Cooper, Clinical Psychologist. In this episode, Dr. Roz shares her expertise on managing uncertainty, particularly in the context of Chronic Kidney Disease (CKD).
This episode is part four of our series on uncertainty. We have previously explored uncertainty from various perspectives, including those of clinicians, parents and pregnancy  with CKD. Today, we conclude the series by exploring practical strategies for managing uncertainty with Dr. Roz.
Dr. Roz discusses how our brains are wired to problem-solve and why uncertainty can be so challenging. She introduces practical strategies such as grounding techniques, scheduling worry, unhooking from thoughts, and understanding personal values. Additionally, the importance of peer support and accessing resources like the Reading Well Agency and mindfulness apps are highlighted.
If you're dealing with the uncertainty that comes with CKD or any other chronic illness, this episode offers valuable insights and tools to help you navigate these challenges.
Listen in for a wealth of practical advice and encouragement, and remember, you are not alone in this journey. Reach out to your renal team or mental health professionals for personalised support.
Thank you for tuning in to Diary of a Kidney Warrior podcast. Until next time, take care and choose to live.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
Resources shared by Dr Roz during the podcast
NHS Talking therapies https://www.nhs.uk/nhs-services/mental-health-services/
 
Apps - Headspace, Smiling Mind
 
Worry time, Worry tree - https://www.nhs.uk/every-mind-matters/mental-wellbeing-tips/self-help-cbt-techniques/tackling-your-worries/
 
Reading Well - https://readingagency.org.uk/get-reading/our-programmes-and-campaigns/reading-well/ 
 
Russ Harris books (list, can find to buy elsewhere - some aimed at therapists but some for the general public) https://www.actmindfully.com.au/product-category/books/
https://diaryofakidneywarrior.getform.com/ojp1p
 
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
 
https://infokid.org.uk/
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
 
Home - Mind
 
Samaritans
 
Tel: 116 123 (freephone)
 
jo@samaritans.org
 
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
 
 

Episode 111: Babies With Kidney Disease: A Mother’s Experience of Navigating Uncertainty

Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.
In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.
 
For updates and more, follow Diary of a Kidney Warrior on:
 
Instagram: www.instagram.com/diaryofakidneywarrior 
Facebook: www.facebook.com/diaryofakidneywarrior 
Twitter: www.twitter.com/diaryofakidneyw 
Tik Tok: @diaryofakidneywarrior 
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
 
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
diaryofakidneywarrior.getform.com/rjv47
 
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
 
https://diaryofakidneywarrior.getform.com/ojp1p
 
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
 
https://infokid.org.uk/
 
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
 
•           Website: www.kidneycarekuk.org
•           Email: info@kidneycareuk.org
•           Tel: 01420 541 424
•           Facebook: www.facebook.com/kidneycareuk.org
•           Instagram: @kidneycareuk
•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
 
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
 
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.