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Episodes
Monday Jun 17, 2024
Monday Jun 17, 2024
Welcome to the new episode of Diary of a Kidney Warrior podcast. Host Dee Moore is joined by Dr. Roz Cooper, Clinical Psychologist. In this episode, Dr. Roz shares her expertise on managing uncertainty, particularly in the context of Chronic Kidney Disease (CKD).
This episode is part four of our series on uncertainty. We have previously explored uncertainty from various perspectives, including those of clinicians, parents and pregnancy with CKD. Today, we conclude the series by exploring practical strategies for managing uncertainty with Dr. Roz.
Dr. Roz discusses how our brains are wired to problem-solve and why uncertainty can be so challenging. She introduces practical strategies such as grounding techniques, scheduling worry, unhooking from thoughts, and understanding personal values. Additionally, the importance of peer support and accessing resources like the Reading Well Agency and mindfulness apps are highlighted.
If you're dealing with the uncertainty that comes with CKD or any other chronic illness, this episode offers valuable insights and tools to help you navigate these challenges.
Listen in for a wealth of practical advice and encouragement, and remember, you are not alone in this journey. Reach out to your renal team or mental health professionals for personalised support.
Thank you for tuning in to Diary of a Kidney Warrior podcast. Until next time, take care and choose to live.
For updates and more, follow Diary of a Kidney Warrior on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
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Resources shared by Dr Roz during the podcast
NHS Talking therapies https://www.nhs.uk/nhs-services/mental-health-services/
Apps - Headspace, Smiling Mind
Worry time, Worry tree - https://www.nhs.uk/every-mind-matters/mental-wellbeing-tips/self-help-cbt-techniques/tackling-your-worries/
Reading Well - https://readingagency.org.uk/get-reading/our-programmes-and-campaigns/reading-well/
Russ Harris books (list, can find to buy elsewhere - some aimed at therapists but some for the general public) https://www.actmindfully.com.au/product-category/books/
https://diaryofakidneywarrior.getform.com/ojp1p
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
https://infokid.org.uk/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
Website: www.kidneycarekuk.org
Email: info@kidneycareuk.org
Tel: 01420 541 424
Facebook: www.facebook.com/kidneycareuk.org
Instagram: @kidneycareuk
YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Mental health issues - Every Mind Matters - NHS (www.nhs.uk)
Home - Mind
Samaritans
Tel: 116 123 (freephone)
jo@samaritans.org
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Jun 03, 2024
Monday Jun 03, 2024
Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.
In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.
For updates and more, follow Diary of a Kidney Warrior on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
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Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
https://infokid.org.uk/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday May 20, 2024
Monday May 20, 2024
Welcome to a special episode of Diary of a Kidney Warrior podcast where our host, Dee Moore, interviews the inspiring Kay Allardyce. Kay, an osteopath Pilates instructor, author, and mom from Bromley, England shares her personal journey from kidney disease diagnosis to transplantation, and her quest for family planning while living with CKD.
This episode shines light on the issues surrounding CKD, fertility, and the impacts of pregnancy during and post kidney transplantation, offering vital insights on this commonly overlooked issue. Kay's transformative life post-transplant, from constant fatigue to London to Paris cycling enthusiast, presents a compelling snapshot of the transformative power of organ donation.
Join us, as we undertake a deep dive into Kay's inspiring journey with kidney disease, her experiences balancing dialysis, transplantation and planning a family, and her advice for other CKD patients contemplating starting their own families. Kay bravely battles CKD, while sharing the powerful tools she used: maintaining physical fitness and a healthy lifestyle.
Not only does she share her personal experiences, but Kay offers resources and contacts for others scouting for information and guidance on handling kidney transplants. Her motivating words bring hope and reassurance that a diagnosis of kidney disease isn't the end but a chance to open new doors with the effective management of kidney disease through communication.
If you were affected by any of the issues raised in this episode contact:
Miscarriage Association
Website: https://www.miscarriageassociation.org.uk/
Helpline: 01924 200 799
Email: info@miscarriageassociation.org.uk
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
Follow Kay Allardyce
Facebook: Kay Allardyce, Author
Website: www.kosteo.co.uk
Kay's 5 top tips around pregnancy after a kidney transplant (Kidney Matters Magazine):
https://kidneycareuk.org/get-support/kidney-matters-magazine/spring-2024/
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday May 06, 2024
Monday May 06, 2024
Welcome to another episode of Diary of a Kidney Warrior. This podcast episode is the first in a series that takes a deep dive into the world of pregnancy and Chronic Kidney Disease (CKD). Our expert guest, Dr. Jan, examines the nuances of a kidney damage diagnosis of the unborn baby during pregnancy and the onset of uncertainties that this health revelation carries.In this comprehensive understanding of CKD, Dr Jan addresses the considerable challenges associated with diagnosing the disease. The episode further explores the emotional turmoil parents endure upon their child's CKD detection and the importance of a multidisciplinary support team surrounding the affected family.As they delve deeper, we grasp the implications of a baby with one or two compromised kidneys, the risks, and its effect on their life quality. The narrative examines how both kidneys damaged by CKD can escalate to later disease stages, potentially necessitating kidney replacement therapy - dialysis or transplantation.The discussion unfolds touching upon the areas of neonatal nephrology, the significant impact of CKD on a child's growth, development, and learning abilities, with emphasis on the importance of kidneys for overall body health. Furthermore, Dee and Dr Jan explore the opportunities and limitations of neonatal dialysis, illuminating the complexities of medical interventions in newborns, especially those at extremely low birth weights.In conclusion, Dr Jan echos the paramount importance of acknowledging these uncertainties and advocate for extensive patient support, peer groups, and committed charities. Final remarks introduce useful resources, such as InfoKid, to aid informed decision-making in healthcare, hence underscoring the need for ample education and a robust support system for CKD patients and caregivers.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
infoKID provides information for parents and carers about kidney conditions in babies, children and young people.
https://infokid.org.uk/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Apr 22, 2024
Monday Apr 22, 2024
In this gripping episode of the Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Kyrie Rowe Hopkins, a brave 33-year-old warrior battling Lupus and Chronic Kidney Disease (CKD). Underlying the podcast's mission of sharing faith, knowledge, hope, and love, Kyrie transparently reveals his personal journey, elucidating the daunting diagnosis, the life-transforming path to dialysis, and the over joyous moment of receiving his first kidney transplant.
Targeted at individuals suffering from kidney disease and related chronic illnesses, as well as those seeking hope and encouragement, this episode beautifully delineates an extraordinary individual's story. From the unexpected onset of kidney deterioration to the generous lifesaving donation from his grandfather, every listener can seize an insightful piece from Kyrie’s inspiring narrative.
Kyrie also serves as a Lupus volunteer and vital peer support for Kidney Care UK's Young Adults Kidney Group, reflecting not only on his struggles with lupus and kidney disease but also on his triumphs. The stirring words from this resilient kidney warrior spotlight the invaluable power of family and friends, persistence in adversity, and relentless hope.
Experience an unbelievable journey brimming with challenges, survival, and the significance of open discussions on one's health status. This episode emphasises Kyrie's indomitable spirit and passion to lead a fulfilling life despite his health conditions, offering an inspiring prospect for those going through similar struggles.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode transcripts, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
Follow Khiry Rowe-Hopkins
Instagram: @ourjourneywithchronicillness
Twitter: @khiryhopkins
Our Journey With Chronic Illness / Adult-ish & Chronic Illness Podcast
https://open.spotify.com/show/4ke9CDLHZXticHFDIkR9ie?si=qAA3HTd9TqymNONhISTcrw
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Apr 08, 2024
Monday Apr 08, 2024
In this riveting episode of the Diary of a Kidney Warrior Podcast, host Dee Moore invites kidney warrior, Senet Kassaye, to share her transformative journey - from unexpected kidney failure and dialysis to eventual kidney transplantation. Senet's vivid recounts of battling diabetes at a tender age, experiencing a sudden stage 5 kidney failure, and the ensuing life-altering decision to undergo dialysis offer valuable insights into the mental rigour required during such transformative periods.
Through a series of probing questions, Dee dives deep into Senet's narrative, elucidating the complexities of her decision-making process, particularly her choice against the fistula. Transitioning to a hopeful note, the conversation culminates with Senet narrating her joyous experience of kidney transplantation, providing a unique perspective and valuable advice for patients facing sudden kidney ailments and possible lifestyle adjustments.
Senet's story is one of survival and resilience. She details her anticipatory anxiety during the drive to the transplant hospital, the rejection of her pancreas transplant and the relief accompanying the acceptance of her new kidney. Discussing the immense physical pain resulting from organ rejection, she grimly recalls opting for a second surgery to remove her pancreas. That said, the successful compatibility of her new kidney re-echoes the monumental significance of a successful transplant, made more meaningful as it saved her from an exhaustive dialysis routine.
In a segment focused on patients' post-transplant needs, Senet shares some practical advice on maintaining the health of the new organ, staying adherent to the medication routine, and keeping a positive mindset. Particularly touching is Senet's appreciation for organ donors and their families, emphasising England's opt-out organ donation system, and encouraging those considering to opt-out to prioritise lives over fears.
This revealing episode concludes on a hopeful note, powerfully resonating the undying spirit of positivity and looking forward to better times despite significant health challenges. Thus, it delivers an inspiring journey of a brave Kidney Warrior, offering light to others embarking on a similar path - proving that there is hope and life after a kidney transplant.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing List to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Join the Diary of a Kidney Warrior Family Transcript Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
https://diaryofakidneywarrior.getform.com/ojp1p
Follow Senet Kassaye
Instagram: @senethtxrealtor
Facebook: Senet K. Idriss
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Apr 01, 2024
Monday Apr 01, 2024
Welcome back, Kidney Warriors and friends, Mi Amors! This is your host, Dee Moore, thrilled to announce the return of the Diary of a Kidney Warrior podcast with a fresh episode on Monday 8th of April. In the meantime, we're excited to guide you back to our beloved classic episodes.
As our esteemed listeners, you are the heartbeat of Diary of a Kidney Warrior podcast. We sincerely value your thoughts and impressions about our show. Therefore, we welcome you to take a moment and click the link in the description box to share your comments, feedback, and suggestions for future episode topics.
Furthermore, if you're itching to stay in the loop with all our updates, feel free to sign up for our free email mailing list. You can also get our free updates via WhatsApp - just click the links provided below.
Enjoy your bank holiday and until our next conversation, we encourage you to take care and choose to live!
Classic episodes:
Podbean
https://diaryofakidneywarrior.podbean.com/
Apple Podcasts
https://apple.co/3ElC04m
Spotify
https://open.spotify.com/show/4Z39vfqTkitEWN6USRHuLP?si=49vHn431R7mxVGbsSGQXhQ
YouTube
https://www.youtube.com/c/diaryofakidneywarrior
Kidney Care UK Podcast page
https://kidneycareuk.org/get-support/podcast/
Join the Diary of a Kidney Warrior Family Email Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!Click the link to join now!
https://diaryofakidneywarrior.getform.com/rjv47
Follow the Diary of a Kidney Warrior Podcast channel on WhatsApp to get new episode reminders, episode links and more!
Click the link to join now!
https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r
For Comments / Suggestions for future topics/ Feedback
https://diaryofakidneywarrior.getform.com/25mdw
Follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Monday Mar 18, 2024
Monday Mar 18, 2024
On this episode of Diary of a Kidney Warrior Podcast, we bring you the powerful story of Emma Kearns, a young peritoneal dialysis patient whose journey is one of resilience, determination, and survival.
From her early diagnosis of kidney disease to battling sepsis, kidney failure, and navigating ableist workplaces, Emma’s experience sheds light on the harsh realities of chronic illness while inspiring hope for others facing similar struggles.
Emma shares how she left behind her life in Liverpool to return to Northern Ireland for a transplant, a move that came with deep emotional challenges, including the fear of catheter surgery and adjusting to dialysis.
We explore the misconceptions surrounding dialysis, the mental toll of being tethered to a machine, and the struggle to maintain a sense of normalcy. She opens up about the painful realities of ‘drain pain,’ living with a catheter, and the impact of public misconceptions about CKD.
Despite these challenges, Emma’s strength shines through. With the support of the TikTok kidney community, she has found a powerful platform to raise awareness about kidney disease, fight stigma, and connect with others on the same journey.
In this heartfelt conversation, we also discuss the barriers young kidney patients face, including the lack of understanding and empathy in workplaces, and the crucial role of social media in building a global support network for kidney warriors.
Join us for this inspiring episode as we explore Emma’s journey—a testament to the resilience, courage, and hope that defines the kidney warrior spirit.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Follow Emma Kearns
Instagram:
https://www.instagram.com/_thekidneychroniclesigsh=NGpidjU0bXgwb3dx
Tik Tok: https://www.tiktok.com/@_thekidneychronicles?_t=8klHphQ0ExU&_r=1
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Young Adult’s Kidney Group (YAKG)
https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Mar 04, 2024
Monday Mar 04, 2024
In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore sits down with Fez Awan, a true warrior who has battled Chronic Kidney Disease (CKD) since birth. Fez’s journey has been marked by immense challenges—three kidney transplants, childhood struggles with illness, and the emotional toll of growing up with a chronic condition. Yet, through it all, his unwavering determination and passion for advocacy shine brightly.
Fez opens up about his early years, navigating school, bullying, and the weight of a lifelong illness, offering an honest and heartfelt perspective on what it means to grow up with CKD. He shares the importance of mental health, support networks, and self-education, reminding young CKD patients and their families that they are not alone. His message is clear: take things one step at a time, focus on what you can control, and never lose hope.
Beyond his personal journey, Fez is dedicated to giving back to the kidney community. As the Chair of a patient-led renal network in Lancashire, England, he continues to advocate for better patient support and awareness. His work is a testament to the power of resilience, positivity, and community strength in the face of chronic illness.
Join us for this inspiring and deeply moving conversation as Fez shares his trials, triumphs, and lessons learned from a life shaped by CKD. His story is more than a testament to survival—it’s a beacon of hope for anyone battling kidney disease or supporting a loved one through it.
For updates and more, follow Dee Moore on:
Instagram: www.instagram.com/diaryofakidneywarrior
Facebook: www.facebook.com/diaryofakidneywarrior
Twitter: www.twitter.com/diaryofakidneyw
Tik Tok: @diaryofakidneywarrior
Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw
Pinterest: https://www.pinterest.co.uk/diaryofakidneywarrior/
Join the Diary of a Kidney Warrior Family Mailing list to get new episode reminders, episode links, Vlogs, newsletters and more!
diaryofakidneywarrior.getform.com/rjv47
Follow Fez Awan
Facebook - https://www.facebook.com/FezAwan
Twitter/X - @fezy
Linkedin - https://www.linkedin.com/in/fez-awan-682713240/
RPLAN Facebook - https://www.facebook.com/groups/472709257105906
RPLAN Insta - https://www.instagram.com/rplan_nw/
If you were affected by any of the issues raised in this episode contact:
Kidney Care UK
• Website: www.kidneycarekuk.org
• Email: info@kidneycareuk.org
• Tel: 01420 541 424
• Facebook: www.facebook.com/kidneycareuk.org
• Instagram: @kidneycareuk
• YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A
To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
Samaritans
Tel: 116 123 (freephone)
jo@samaritans.org
Chris,
Freepost RSRB-KKBY-CYJK
PO Box 90 90 Stirling FK8 2SA
samaritans.org
Samaritans are open 24/7 for anyone who needs to talk.
You can visit some Samaritans branches in person.
Samaritans also have a Welsh Language Line on 0808 164 0123 (7pm–11pm every day).
Suicide Prevention UK
For help and support,
available from 6 pm to midnight every day call 0800 689 5652
Childline
Tel: 0800 1111
childline.org.uk
Support for children and young people in the UK, including a free helpline and 1-2-1 online chats with counsellors.
Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Monday Feb 19, 2024
Monday Feb 19, 2024
Welcome to an insightful episode of Diary of a Kidney Warrior podcast where Kidney Warriors and Health Professionals share their experiences and knowledge about kidney disease. This episode, hosted by Dee Moore, a dedicated kidney health advocate and kidney warrior herself, features Dr. Lavanya Kamesh, a Consultant Nephrologist from Birmingham, England with a 15-year specialisation in Peritoneal Dialysis.
This episode dives deep into the nuances of Peritoneal Dialysis, dissecting how it operates and who it might suit. Dee Moore shares her personal experiences with peritoneal dialysis. Listeners are also offered an in-depth understanding of the contents and the significance of the peritoneal dialysis fluid.
Dr. Kamesh provides an expert perspective, emphasising the benefits of peritoneal dialysis, such as its ability to preserve a patient's independence. Additionally, the episode elaborates on the importance of informed decision-making and patient choice in determining the type of dialysis one chooses.
The episode also delves into challenges faced during peritoneal dialysis, such as infection risks and tube malfunctions, and the measures in place to minimise these risks. Another aspect discussed is the concept of 'self-care', emphasising the patient’s role in taking full ownership of their health. Everyday practicalities of peritoneal dialysis, like the types of bags used and storage of dialysis supplies, are also discussed.
The episode concludes on an optimistic note, providing practical advice and outlining how patients can benefit from peritoneal dialysis while managing its associated challenges. Tune in to learn, be inspired, and gain valuable insights.
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Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.
Join Kidney Warrior, Dee Moore, as she interviews guests and explores all aspects of Kidney Disease, related Chronic Illnesses & Health.
If you are a Kidney Warrior or the family or friend of a Kidney Warrior who wants to learn more about Kidney Disease, Kidney Disease prevention and be encouraged and uplifted, this is the Kidney Health Podcast for you.